John and Linda Fordyce

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We are so blessed to have a great family and so many, many good, loving friends who are concerned and praying for Linda when she needs it. Thank you!

Friday, November 14, 2008

Helplessness

Tuesday evening, Mom was unable to work the call button. She tried pushing her call button for a very long time. Finally, she resorted to yelling and screaming but noone came. When someone eventually came, she was told that the call system had not been working all day!!! We hadn't known because we hardly ever need the call button when we are already there to help her in the daytime. She looked the person as straight in the eye as she could, lying flat on her back with her neck brace on, and said "You have a responsibility to let every patient on this floor know about this and someone needs to check on them regularly." Unfortunately, the message didn't seem to get through. When John learned of this Wednesday morning, he really let the management know how unacceptable this was. It turned out that upper management had not even been informed of the fact that the system was out! Later, when a technician was in Mom's room, she realized that someone had even lied to her about it. He said that he's on call and could have repaired this 24/7, but she had been told they'd have to wait until the daytime to call for repairs.

Overall, Mom has received rather excellent care from many wonderful professionals at both UAMS and Select Specialty Hospital, and she credits many for having saved her life! It is sad and disturbing when we come across the few staff members who don't practice traditional ethics and standards regarding patient care. Mom was just as concerned for the many other patients on the floor. Many have remarked that medical care used to be more like a calling. Has it become just a job.? How dare they leave helpless, bedridden people alone without any means to call for assistance!

Now, each night before John leaves, he makes sure the call button works but also puts the telephone near Mom's right hand and she has the number for the nurse's station memorized, but it is still difficult for her to dial it with only her four fingers. She's gradually getting some use from her left arm but the left wrist is extremely sore from being idle for more than one month.

According to contract, there will be a total of 21 days in this hospital--halfway there now--before Mom can move to either Baptist Rehabilitation or possibly home. I'm flying back to Saipan on December 10 so I really hope she can make a lot of progress by then. She is more frequently trying to sit up, stand, and walk a bit now. She is so tired of staying in bed! It is so much easier without that chest tube and IV, plus the healing skin graft is allowing her to work the left arm now. Physical Therapists and Respiratory Therapists visit her daily to encourage her to work.

Several friends have kindly agreed to come in for mealtimes since it is still rather hard for Linda to feed herself. This gives John a little longer break through lunchtime and the afternoon. Thank you so much to those of you who can give your time to help. You are wonderful! Thank you, also, for all of you who continue to have Linda in your thoughts and prayers. She is so thankful.

~Mindy

2 comments:

Anonymous said...

Mindy, thanks for sharing this frustrating experience. Unfortunately, the hospital treatment (or lack) Linda is experiencing is typical all across the US.

When my husband was in the hospital for 4 months, I had daily battles with nurses, CNAs, PTs, nutritionists, doctors and charge nurses. My complaints were many and loud when I found outrageous neglect, resulting in multi-discipline meetings with me and the hospital staff. I had become as knowledgeable as any nurse by then and knew what problems to look for (bedsores, meds, room cleanliness, the right foods, etc. At night I could read his chart and see what meds they forgot and if he got PT).

I know how exhausting this is for all of you and for Linda, but you are all doing the right things. Keep fighting for ethical, careful, respectful care from every staff member. They do forget because many are over-worked or are distracted by personal or work problems. It is now the norm for family members to watch their patient like a hawk and demand whatever is needed.

I know Linda will be relieved to be home again and receiving more loving, considerate care.

Thanks for keeping this daily blog going. I deeply appreciate the news and the stories and the triumphs. My thoughts are with you, Linda, as you heal and get stronger. God Bless you, John and your wonderful family!

PS to John: Hang in there, John. She'll be home soon and everything will be all right again. Be of good faith and don't worry. All of it will work out well. So, please take a deep breath and smile. Every day is a good day!

Love you all,
Linda
Cave Junction, Oregon

Anonymous said...

Hang in there Mindy and John. Mindy the pics are on the way to you from this summer. Thank goodness Aunt Linda has a wonderful family looking after her---so that the bad staff at this place can't hurt her.
Keeping you in our prayers.
Ginger, Kris and Antonio